Feeling broken....

Feeling broken….

So not wanting to rehash all that has been in the press… I’m left yet again with a feeling of impending doom….. I’m yet to fully understand the true implications of this bit of current new research… but it’s not doing much for the most severe suffer….. nobody is doing much for the most severe cases…. I wonder how many will just give up the fight… the continual daily battle… it breaks my heart when I hear we have lost another fellow warrior….. that they could no longer face this demoralizing existence…. It’s a daily miracle that we manage to survive….. that those of us with the energy to fight on do so for all those who can’t….. there are wonderful kind beautiful people who I’ve the privilege to call my friends ….. who are supportive …. who use valuable energy to help us understand the complexity of this illness…. who tirelessly work keeping information for all to see…. who muster when we need the world to see our plight….. It’s like a fantastic family…. with one goal…

It’s truly amazing what a small group of committed people can do… ( even when they are so dam sick ) so I’m sending out a special bit of love and hugs … and thanks to all those unsung warriors xxxx

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