So my medical report from my assessment last Friday has arrived in the post today…. I was told that I wouldn’t have the decision from the DWP for possibly another 4 to 6 weeks… but from the indicators on the report… she has actually given me enough points for standard on both mobility an daily […]

So I rang the DWP….. I nearly gave up on the process….. 20 minutes on hold listening to Vivaldi’s 4 Seasons….. enough to make you give up the will to live ….. But I was in for a treat…. the gentleman I spoke to was clearly extremely efficient…. he also had a lovely accent…. he […]

That’s how I feel….. as I only had less than 48hrs noticed…. it wasn’t really a problem because it’s not like I have a full social calendar…lol .. The lady who arrived at 11-45am was genuinely nice…. she was understanding and seemed to be knowledgeable about my condition… plus how it impacts my daily life…. […]

Update time ….. so my phone rang just after lunch today…. it was to ask if I could be available for my home PIP assessment on Friday…. as usual I was Monday mode …. so thought that’s fine …. not like I’ve got anything on my busy schedule… I checked my diary… all clear… plenty […]

It’s getting a little weird… this mornings post …. a letter dated 24th August stating they haven’t received my form arrived on the 31st August…. saying I can have an extra 14 days to send my form back to them …. it was posted on Thursday 29th August…. my date for the form to be […]

Phew … it’s on it’s way back to the powers that be…… This has been a difficult task… one I couldn’t tackle alone…. plus it would seem my body didn’t want to play ball…. weather this was coincidental or a unfortunate occurrence I don’t know…. but on Saturday I spent a considerable time on the […]

Stand up for Gigi youtu.be/uTd_FKUTJY8 via @YouTube #standupforGigi #ME #pwME please don’t let them continue to harm sufferers…. please share this so everyone can understand what is actually happening to Gigi xxxx

I’ve spent the past week struggling with reading through the new PIP application…. yet another week of feeling sick to the pit of my stomach… you ask why?… so here it is …. I have had to look over the details of my every day limitations of my life …. (not easy ) see how […]

It’s Monday morning post… the forms have arrived… I’m going through the process of changing from a lifetime award of DLA to the new benefit PIP …. 40 pages of questions… all to help them to decide if you need financial help to live …. I am at this point unable to understand how filling […]

So Saturday arrived… nothing in the post… but sadly I woke with a migraine.. (deep joy) I don’t get them very often… but this was a bit of a hum dinger… I’ve realised that my usual calm way with dealing with things is starting to crumble… my condition (Myalgic Encephalomyelitis ) doesn’t respond well to […]