The Secret Files Unwrapped: Part 2 – Control, not Collaboration

Great blog Valerie, collaboration must definitely replace control… it can’t happen soon enough…


NOTE: since I began writing this post, the Centre for Infection and Immunity at Columbia University’s Mailman School of Public Health in New York City released the findings of a large study of ME/CFS (see below) patients. Media coverage has been extensive – although much of it is standard churnalism, rather than anything more trenchant (see my previous post). This study could prove to be a game-changer, a minor milestone or just a flash in the pan. It’s too soon to make a realistic assessment but so far the results – and the consequent extended narrative of this illness – look promising.


For those who are unfamiliar with the story of “The Secret Files” and the illness ME/CFS, the full background is set out in the introduction to Part 1 of this post. This is a short extract:

For several years, there had been considerable speculation and rumour surrounding some “secret” files on ME/CFS  (the illness I have lived with since…

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