A proposal

So if you had ME as a child please participate, please share, please help, x

Utting-Wolff Spouts

This post is not what you might have expected; it even has a working title:

Growing up with ME: surviving childhood and becoming an adult while chronically ill

We would like to invite you to participate in an anthology on children with ME. If you are an adult who became ill as a child or teenager, we would like to hear from you.

Background: children and teenagers suffering from myalgic encephalomyelitis are especially vulnerable; having become ill as children ourselves, their welfare is of particular concern to us. The experience of becoming chronically ill when young is quite different to becoming ill as an adult. Children often endure illness unheard and ignored, with none of the life experience or authority of an adult to help them cope with their significantly altered condition. They have the added problems of dealing with incompetent medics, school psychologists, physiotherapists, uncooperative school staff and…

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