So not wanting to rehash all that has been in the press… I’m left yet again with a feeling of impending doom….. I’m yet to fully understand the true implications of this bit of current new research… but it’s not doing much for the most severe suffer….. nobody is doing much for the most severe […]
Originally posted on Utting-Wolff Spouts:
One of my special interests is knowledge production: how do we create knowledge and how is that knowledge then perceived and received? Bear with me, this is not empty waffle, I assure you. Think about it for a moment, how do we know what we know? We can only know…
The silly IOM ( institute of morons ) renamed of our illness S.E.I.D. my memory is so shot from having Myalgic Encephalomyelitis I can’t remember what the so called new name is…. it doesn’t have a WHO code ..or a very good definition… but that doesn’t matter does it…. I do know how these government […]
The IOM redefinition …. great blog as ever … shameful event..
Originally posted on Thoughts About M.E.:
This coming Tuesday is the day of the unveiling of the IOM report on a new clinical case definition and new name for ME/CFS commissioned by HHS for $1 million. Although HHS did everything in their power to lobby for the IOM, the report lacks in credibility in ways…
Originally posted on Utting-Wolff Spouts:
This post is not what you might have expected; it even has a working title: Growing up with ME: surviving childhood and becoming an adult while chronically ill We would like to invite you to participate in an anthology on children with ME. If you are an adult who became…
Originally posted on Utting-Wolff Spouts:
There has been some discussion among sufferers of chronic illness and disability as to the usefulness of theoretical or conceptual models (social, biomedical, etc) to explain the complexity of disability and chronic illness. A concern raised in the past few days, following a blog post that addressed the social model…
Short Blogs for the Distracted......... 