Giving Science a Bad Name: unethical psychiatric research into ME

‘It is the duty of physicians who participate in medical research to protect the life, health, dignity, integrity, right to self-determination(…) of research subjects'[1]

Utting-Wolff Spouts

‘It is the duty of physicians who participate in medical research to protect the life, health, dignity, integrity, right to self-determination(…) of research subjects'[1]

In the flurry of activities sparked by another media onslaught on the chronically ill on 14th January (to be followed by a similarly, probably more loosely, orchestrated attack in Sweden on 15th January), I got caught up in collaborating with dozens of others who had written, and keep writing, brilliant, witty, intelligent, emotional, heartrending responses to journalists and science editors. 14th January 2015 was an exhausting day and on a more serious note, it was an unnecessarily painful day, too. While I was comforted by the responses from other sufferers in the UK, Sweden and elsewhere, I couldn’t help asking myself what sort of world we would live in if a serious and debilitating disease such as myalgic encephalomyelitis (ME)[2] were taken seriously…

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