So spoons For peeps who don’t know what I’m talking about….. living with an illness that seriously affects your function is hard work in itself….. The spoon theory in brief ….. we have allocated each day an amount of spoons….. It’s a limited amount of spoons….. Every time we do something it removes a spoon […]
Originally posted on Utting-Wolff Spouts:
‘It is the duty of physicians who participate in medical research to protect the life, health, dignity, integrity, right to self-determination(…) of research subjects'[1] In the flurry of activities sparked by another media onslaught on the chronically ill on 14th January (to be followed by a similarly, probably more loosely,…
Originally posted on valerieeliotsmith:
I created this blog in August 2012 to publish my investigations into the so-called “Secret files on ME/CFS”. It was set up rather hurriedly in order to counteract some misinformation which was circulating at the time. My work was not finished when I started the blog and it took me some time to complete the process. In the absence…
Originally posted on Thoughts About M.E.:
Today, I filed a request with Barbara James, DFO of CFSAC, under the Federal Advisory Committee Act (FACA) regarding the January 13, 2015 CFSAC meeting and CFSAC’s P2P comments. My letter, which in addition to requesting immediate access to various documents relating to the meeting and comments, shows that FACA was clearly…
Originally posted on Thoughts About M.E.:
Yesterday, I sent the following email to Ms. James, DFO of CFSAC: Dear Ms. James, I heard that the CFSAC P2P Working Group had prepared a document for official submission regarding P2P to be discussed at the upcoming CFSAC meeting and that this report was heavily edited by…
Originally posted on Utting-Wolff Spouts:
Another example of all that’s wrong with the media’s reporting of ME appeared in the press this morning (14/01/2015), no doubt disseminated by our ‘friends’ at the Science Media Centre. Apparently exercise helps improve people with ME, no surprise that this ‘evidence’ is provided by the usual suspects at King’s…
Originally posted on Utting-Wolff Spouts:
In my former life as a pseudo-healthy academic I researched, wrote and taught extensively on ethics and what the absence of ethics in research and organisations mean for the individual. When I went from mildly ill to home- and sometimes bedbound-ill I suddenly had ample opportunity to observe communication patterns…
Originally posted on Utting-Wolff Spouts:
To continue the meme relating to the media’s inadequacy when it comes to coverage of ME matters, I shall mention the PACE trial*, a study unique in its lack of scientific rigour and general awfulness. If it weren’t for NICE using the trial as a guide on how to mistreat…
As it’s 2015 a new year and all that….. I think it’s perhaps time to start to blog in a meaningful way…. but as the title suggests they will be short… ( I currently have the attention span of a goldfish… ) I feel that the new year beckons some changes…. I know I can’t […]
Short Blogs for the Distracted......... 