So spoons For peeps who don’t know what I’m talking about….. living with an illness that seriously affects your function is hard work in itself….. The spoon theory in brief ….. we have allocated each day an amount of spoons….. It’s a limited amount of spoons….. Every time we do something it removes a spoon […]

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Giving Science a Bad Name: unethical psychiatric research into ME

Originally posted on Utting-Wolff Spouts:
‘It is the duty of physicians who participate in medical research to protect the life, health, dignity, integrity, right to self-determination(…) of research subjects'[1] In the flurry of activities sparked by another media onslaught on the chronically ill on 14th January (to be followed by a similarly, probably more loosely,…

The Secret Files Unwrapped: Part I – the importance of fair and accurate records

Originally posted on valerieeliotsmith:
I created this blog in August 2012 to publish my investigations into the so-called “Secret files on ME/CFS”. It was set up rather hurriedly in order to counteract some misinformation which was circulating at the time. My work was not finished when I started the blog and it took me some time to complete the process. In the absence…

FACA Request: Did HHS Orchestrate CFSAC’s P2P Comments?

Originally posted on Thoughts About M.E.:
Today, I filed a request with Barbara James, DFO of CFSAC, under the Federal Advisory Committee Act (FACA) regarding the January 13, 2015 CFSAC meeting and CFSAC’s P2P comments. My letter, which in addition to requesting immediate access to various documents relating to the meeting and comments, shows that FACA was clearly…

New Year…. ummm to do list

As it’s 2015 a new year and all that….. I think it’s perhaps time to start to blog in a meaningful way…. but as the title suggests they will be short… ( I currently have the attention span of a goldfish… ) I feel that the new year beckons some changes…. I know I can’t […]